Contacts
Email contacts will have to be typed in. (trying to reduce the size of my spam folder)
admin at iheartsophia dot com
michael at iheartsophia dot com
patty at iheartsophia dot com
-
Flickr Photos
More Photos
Email contacts will have to be typed in. (trying to reduce the size of my spam folder)
admin at iheartsophia dot com
michael at iheartsophia dot com
patty at iheartsophia dot com
|
August 26, 2007 at 4:03 pm |
Hi there, I found your site from a link on Brinlyn’s page. Her mom responded to a post I made on the yahoo vcfs family support page looking for AZ families touched by vcfs or digeorge. You wouldn’t happen to be in AZ or know any families from here? I am starting the Phoenix family support group and am looking for participants.
Thanks for your time,
Jenny
mom of Luke age 3, vcfs, severly cute
August 26, 2007 at 4:04 pm |
Sorry, please contact me at JRockrich@msn.com
thx
October 23, 2007 at 12:23 pm |
I am looking for a support group for Di George in my area I live in Middle Tn. If you know of any please let me know.
Thank you
Sandra Taylor
October 14, 2009 at 8:29 pm |
Dear Sandra Taylor,
I replying to you request for a support group for DiGeorge/VCFS in Middle Tennessee. I live in Kingston Tn. closed to Knoxville. I have started a support group for my daughter who has DiGeorge we have several families and we have a meetings once a month with things for the kids. I want to educate and bring awareness to VCFS with the group if interested contact me goadbridget@yahoo.com.
Thanks,
Bridget
January 4, 2008 at 10:38 pm |
Hi,
I was reading your daughters site tonight and we too have some things in common. One is that we both have very beautiful little girls. Ours is about 3 months younger than your Sophia. The other is that they both have heart defects. And the third is that they both have Digeorge.
I look forward to getting to know you all better and reading up on your little one.
Take care,
Pam and Madison
http://www.caringbridge.org/visit/madison